Comments on: A Plea to the Chordoma Community http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/ News and commentary on Chordoma research, fundraising, and the community. Wed, 21 Jul 2010 15:33:36 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Tina Rosen http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-15 Tina Rosen Wed, 21 Jul 2010 15:33:36 +0000 http://blog.chordoma.net/?p=4#comment-15 And, words pale in thanking you for all of your hard work for all of us. I pray for your continued good health. Sincerely with a hug, Tina And, words pale in thanking you for all of your hard work for all of us. I pray for your continued good health.
Sincerely with a hug,
Tina

]]> By: Tina Rosen http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-14 Tina Rosen Wed, 21 Jul 2010 15:27:28 +0000 http://blog.chordoma.net/?p=4#comment-14 Dear Johnny, You're an incredible writer! I remember you from the meetings in Wash., as well as your very kind mom. Thank you for reminding us what needs to be done. I've tried to make it happen here, and it was a very disappointing situation, given the mountain (Okemo) was not receptive at all. I've gotten more involved and will try again with a different venue. Dear Johnny,
You’re an incredible writer! I remember you from the meetings in Wash., as well as your very kind mom. Thank you for reminding us what needs to be done. I’ve tried to make it happen here, and it was a very disappointing situation, given the mountain (Okemo) was not receptive at all. I’ve gotten more involved and will try again with a different venue.

]]> By: jbn http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-13 jbn Wed, 21 Jul 2010 13:10:36 +0000 http://blog.chordoma.net/?p=4#comment-13 @saurabh: I'm glad to hear you are enthusiastic about contributing! Good luck on your surgery. @Ed: It has healed pretty well. My wrist is still tight, but I can type, which is all I need. @saurabh: I’m glad to hear you are enthusiastic about contributing! Good luck on your surgery.

@Ed: It has healed pretty well. My wrist is still tight, but I can type, which is all I need.

]]> By: Edward Les http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-12 Edward Les Wed, 21 Jul 2010 12:55:35 +0000 http://blog.chordoma.net/?p=4#comment-12 Excellent piece, John.... we all need to be reminded again from time to time as to the gravity of the situation and the urgency of the battle. Hope your scaphoid is healing well..... that little bone can be a troublesome mender. Ed Excellent piece, John…. we all need to be reminded again from time to time as to the gravity of the situation and the urgency of the battle.
Hope your scaphoid is healing well….. that little bone can be a troublesome mender.
Ed

]]> By: Saurabh Sharma http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-10 Saurabh Sharma Wed, 21 Jul 2010 03:52:20 +0000 http://blog.chordoma.net/?p=4#comment-10 I have a surgery on Aug 06. Chordoma Foundation and Sharon, Rob played a key role in taking important medical decision. I will be full in to contribute financially as well as an cancer researcher I have a surgery on Aug 06. Chordoma Foundation and Sharon, Rob played a key role in taking important medical decision. I will be full in to contribute financially as well as an cancer researcher

]]> By: jbn http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-9 jbn Wed, 21 Jul 2010 03:25:01 +0000 http://blog.chordoma.net/?p=4#comment-9 @sharon and @michael: I'm glad you two are the first commenters. It's oddly satisfying. @Diane: Maybe my next few blog posts should share how other successful fundraisers raise money. While the letter writing campaigns work very well, The Seaman family obviously has some other good ideas. @sharon and @michael: I’m glad you two are the first commenters. It’s oddly satisfying.

@Diane: Maybe my next few blog posts should share how other successful fundraisers raise money. While the letter writing campaigns work very well, The Seaman family obviously has some other good ideas.

]]> By: Diane Seaman http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-8 Diane Seaman Wed, 21 Jul 2010 02:29:48 +0000 http://blog.chordoma.net/?p=4#comment-8 John, Any way to raise funds is a good way if it helps to fight chordoma. We raised almost $2500 this year and will continue to do so. Tyler will sell chordoma bracelets at camp and the money will go to the foundation. I not sure about writing to friends and family but will consider the idea. Great to hear you're working on the fund raising pages; they need your help. Stay healthy. The Seamans John,

Any way to raise funds is a good way if it helps to fight chordoma. We raised almost $2500 this year and will continue to do so. Tyler will sell chordoma bracelets at camp and the money will go to the foundation. I not sure about writing to friends and family but will consider the idea. Great to hear you’re working on the fund raising pages; they need your help. Stay healthy.
The Seamans

]]> By: Michael http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-6 Michael Wed, 21 Jul 2010 01:37:21 +0000 http://blog.chordoma.net/?p=4#comment-6 We are in! We will make our contribution in September. Great challenge and doable! We are in! We will make our contribution in September.

Great challenge and doable!

]]> By: sharon berlan http://blog.chordoma.net/2010/07/20/a-plea-to-the-chordoma-community/#comment-5 sharon berlan Wed, 21 Jul 2010 01:18:41 +0000 http://blog.chordoma.net/?p=4#comment-5 this is great..thanks for the wake up call. Well said! Sharon this is great..thanks for the wake up call. Well said!

Sharon

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